The thought has been lurking in my brain since I began to learn more about Celiac. If at least one of my children has Celiac… the likelihood is there that I could be the parent carrying the gene. Especially with the myriad of health issues I have had throughout my lifetime. (I’m not going to go into those here, if you’d like the whole nine yards, shoot me an email!)
Finally, I get in to the Docs… I have been so busy with the kids, that I haven’t found the time for me. It was time for my annual. (ICK). So, I asked to have the screening for Celiac done while I was there last week. My Doctor called today to tell me the results: tTG-IgA elevated, EMA IgA normal. She didn’t know what to make of the results and is sending me to a GI specialist. (I wasn’t screened for AGA-IgG or AGA-IgA, we don’t know if I have an IgA deficiency which would be a reason for the EMA IgA to be normal.)
From the research I have been doing online, the tTG-IgA is the most sensitive and accurate blood test. A positive result here indicates a high likelihood of Celiac.
Do I want to proceed with a biopsy to confirm what I have already believed to be the case? Not sure on that one yet. Part of me wants the definitive answer… especially since Hubby says “you’ve lived this long on a normal diet why not continue.” I tried to explain how severe my GI symptoms have been, but really, I don’t talk about that stuff with him. It’s too embarrassing! I also attempted to inform him of the lifetime implications of untreated Celiac… not just the GI and fatigue, but also the link to diabetes and other auto-immune diseases, osteoporosis, etc…
I am so tired of being tired and rundown all the time. I go like a crazy woman. Afterall, I have five kids to take care of, a Mother who has ALS, a Husband who travels often for work, my commitments to the school PTC and Church Hospitality… and then of course, I have taken on another duty by choosing to homeschool TeenGirl this coming year. I need, need, need to feel like I have slept when I wake up in the mornings… lately it takes several cups of coffee just to keep me awake! (Fatigue is only one of my “symptoms”.)
If the answer is a GF diet… so be it. It’s going to be hard to give up my favorites… toast, bagels, pasta… but I will survive. I told K3 that I might have to go on her diet as well, instead of being happy to share her diet she proclaimed, “I don’t want to be on this diet anymore!”. I told her, that if Mommy and Little Critter are on the same diet, then it won’t be such a big deal for her.
I advised Oregon Dad that if my diagnosis is Celiac… our entire family will be mostly GF, afterall we have one kid GFCF with another that is going to be soon by all indications and possibly myself. That’s 3 out of 7 and its much easier to cook meals everyone can eat. We do a lot of pasta around here, it’s a relatively inexpensive way to feed this crew, normally I just boil separate noodles for K3 and make a sauce that everyone can enjoy. We are either going to have to give up pasta or I need to figure out how to make a really tasty one that is GF. The commercially available GF pastas are too pricey to feed the entire crew!
It will be a great day when we have figured out all the health issues in this house and get everyone on track. I really think we are getting closer.
By the way—- this month marks the SIX month anniversary of TeenGirls remission. It is also the point where we begin to wonder if her immune system will turn on her again or if she will stay healthy. All signs are pointing to continued health. She will continue to have monthly blood draws to monitor her and regular check ups with the Hematology/Oncology Docs at Doernbecher, but we are confident she is going to be seeing a decent amount of time as a healthy teenager!